Provide support to rare pediatric disease and inspire hope for those in need of it most.

There are currently over 12,000 Rare Diseases affecting 400 million people worldwide. 75% of these affect children, most of whom will never see the age of 5. Worst of all, less than 5% of these have any form of treatment, let alone a cure.

The term “brave” does not come close to capturing the courage of these children. On the flip-side, as a parent, there are no words to describe the degree of helplessness knowing your child has a fatal disease and there is no treatment, there is no cure, and worst of all, nothing is being done to try to find one. Unfortunately, this is a reality for many. This is the world of Pediatric Orphan Disease.

The Fierce Pierce Foundation was born out of the hope, optimism and good that can come out of even the most difficult and trying times. While we are working through the logistics of standing up this legal entity, all of the Fierce Pierce Foundation’s efforts are aligned with and fully support the Eleanor Kaplan Foundation and its efforts in finding a cure for TECPR2.